The use of medical cannabis unfortunately still remains a contentious and debatable subject matter. The issue of prescribing cannabinoids to treat burdensome and serve epilepsy syndromes such as Lennox-Gastaut syndrome and Rasmussen Syndrome etc has receive lots of press over the past year in respect of several high profile cases.
The government approved doctors to prescribe cannabinoid treatment for children hood epilepsy by autumn 2018. We are now approaching Easter 2019 and family’s are still at crisis point, battling through the stresses and strains of every day life, feeling helpless as the epilepsy medicationsWe don’t have any impact, and are at stages of desperation willing to do anything and everything to help and support there children.
Oh but wait clinican trials have to be put in place before prescriptions can be issued to confirm that:
The patient has tried all the available licensed epilepsy medicines for their specific type of epilepsy without any positive results.
Have tried the ketogenic diet and didn’t have much success with it.
Don’t qualify for epilepsy surgery.
before we can actually help our children this is absolutely shocking and ridiculous.
Cannabis products which are available in the UK and on the internet are not regulated medicines so their contents and dosage will not be consistent. It is essential that people must always speak with their specialist nurse and epilepsy consultant if they are considering any alternative treatments this is vital.
Epilepsy syndromes including Lennox-Gastaut is difficult to treat and children with it generally have poor seizure control and outlook, despite treatment. Seizures are common, and most children have developmental delays caused by this condition.
This trial provides evidence that cannabidiol may help improve drop seizures. However, the question is whether this improvement is great enough to make it a regular and safe treatment. The trial was well researched and suggested that cannabinol is an effective treatment for children with difficult to control forms of epilepsy.
Seizure frequency effects have been taken into consideration but it’s possible this improvement wouldn’t make much difference to the child’s development as they grow into adulthood.
Let’s hope that positive results elsewhere leads to widespread usage.
Always keep positive, strong and keep smiling. You are never ever alone.